I am sharing a post written by a lady who has early onset dementia. She is coping fantastically well, has regular meetings with the likes of NHS high-ups, the media and those with the power to change things so we can all live in a dementia-friendly society.
In order to help her cope independently she, and her family, have put several dementia-friendly strategies in place in her own life. This also give her the means to do what she does to raise awareness. Now she has been turned down for PIP funding (Personal Independence Payment) which would help her to keep her independence, to travel to meetings with those in power and, more importantly, keep her morale and dignity high. She just cannot understand why, when she has a progressive illness and used to get this funding, it has now been withdrawn.
I am angry on her behalf and on behalf of all those who try to keep their dignity and independence against the odds.
The link to her post is below, outlining the reasons why she was turned down for this important funding, together with the comments ‘they’ made on each of the points she made. I am fuming … if you are too, please share.
It’s also worth reading her other posts. She is an amazing person. I only hope I can be that strong if I am ever in the same position.
Thanks for reading.
https://whichmeamitoday.wordpress.com/author/wendy7713/
http://www.advicenow.org.uk/guides/how-win-pip-appeal
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